Affirming an Ethic of Care:
Bridging the Gaps at the End of Life
October 2, 2015
Program
| 8:00 a.m. | Registration and Refreshments |
| 8:45 a.m. | Morning Prayer with Catholic Health Association of Ontario |
| 9:00 a.m. | Welcoming Remarks |
| 9:10 a.m. | Opening Address Balfour M. Mount The Potential for Healing at the End of Life |
| 10:10 a.m. | Question and Answer Period |
| 10:30 a.m. | Refreshment Break |
| 10:45 a.m. | Presentation Naheed Dosani Living & Dying on the Streets: Palliative Education And Care for the Homeless (PEACH)David Byrne Dying Inside: The End of Life Experience for Inmates and Health Care Providers in Federal Correctional Institutions Dan Haley Alternatives to Incarceration: Dying with Dignity in the Community |
| 11:45 a.m. | Question and Answer Period |
| 12:00 p.m. | Lunch with Musical Interlude |
| 1:00 p.m. | Presentation Katherine Rouleau End of Life Care at the End of our Road: Spirits, symptoms and surprises |
| 2:00 p.m. | Question and Answer Period |
| 2:15 p.m. | Refreshment Break |
| 2:30 p.m. | Closing Address Debra Parker Oliver Validation and Support for the Family Caregiver: The Overlooked Patient |
| 3:30 p.m. | Question and Answer Period |
| 3:50 p.m. | Closing Comments |
Presenters
Balfour M. Mount, OC, OQ, MD, FRCSC, LLD
Emeritus Professor of Medicine at McGill University
The Potential for Healing at the End of Life
The biomedical model focuses on the pathophysiology of disease while neglecting the broader existential depths that frame our experience of illness. Our potential for healing in the face of progressive disease, a potential rooted in the special relationship formed between healer and sufferer, so familiar to Osler, the shamans of primitive cultures and faith healers, remains an untapped resource. Cassell has eloquently expressed the reality underlying the flaw in modern medicine’s paradigm, “same disease, different patient – different illness, pain and suffering.”
Naheed Dosani, MD, CCFP, BSc
Palliative Care and Family Physician, Inner City Health Associates, Palliative Education And Care for the Homeless (PEACH), St. Michael’s Hospital
Living & Dying on the Streets: Palliative Education And Care for the Homeless (PEACH)
This talk will describe the unique issues and challenges faced by homeless and vulnerably housed patients with life-limiting illness and learn about concerns relating to communication and care co-ordination for this vulnerable population. It will also address strategies to support quality-of-life interventions (medical and psychological) and safe discharge from the hospital, as well as introduce a new model of care: PEACH (Palliative Education and Care for the Homeless).
David Byrne, BA, MDiv, PhD (Cand.)
Director, Programs, Peterborough Community Chaplaincy
Dying Inside: The End of Life Experience for Inmates and Health Care Providers in Federal Correctional Institutions
In 2014 the Office of the Correctional Investigator completed a study of the Correctional Service of Canada’s (CSC) mortality review process that produced ‘disturbing results.’ The most alarming of which were that the average age of inmates at death is just 60 years and that standards for health care for dying inmates are critically substandard. Despite these results, and that inmates near end of life pose little threat to the community, they are rarely released from prison to receive palliative care. This brief presentation will outline the current conditions facing dying offenders and will discuss how reports of moral distress by CSC health care professionals help to illuminate the various ethical issues that have yet to be resolved.
Dan Haley
Executive Director, Peterborough Community Chaplaincy
Dying Inside: The End of Life Experience for Inmates and Health Care Providers in Federal Correctional Institutions
Impacted by time spent with dying inmates in federal correctional institutions, shortly after Community Chaplain Dan Haley opened his transition house in Peterborough, Ontario in 2007 he began to accept offenders as part of an emerging palliative care program. Eight years later the program has received widespread recognition as a model for dignity enabling end of life care for offenders, especially those most difficult to serve. In this brief presentation Dan will outline the process towards and motivation for the creation of his program, describing the moral obligation that communities have to care for offenders near death.
Katherine Rouleau, MDCM, CCFP, MHSc
Associate Professor, Department of Family and Community Medicine, University of Toronto
End of Life Care at the End of our Road: Spirits, symptoms and surprises
This presentation will begin with an overview of some key information from the WHO Palliative Care Atlas which outlines the state of end of life care around the world. The concepts of life and death in various parts of the world will be explored in order to illustrate the great diversity that exists. Some of the hurdles we face as a global community in meeting the end of life care needs for the world’s population will be discussed and some potential “steps and strategies” proposed.
Debra Parker Oliver, MSW, PhD
Professor, School of Medicine, Department of Family and Community Medicine, University of Missouri
Validation and Support for the Family Caregiver: The Overlooked Patient
After more than 30 years as a Hospice social worker, administrator and researcher, Dr Parker Oliver found herself a caregiver of a hospice patient and unprepared for the end of life journey, when her husband was diagnosed with Stage IV cancer. She shares her personal experience with the message that there are two patients in this journey. One is dying, the other feels as though they are dying, but will survive to find themselves alone. For the dying patient there is a care plan, medications, equipment, professional help, family help, and social support. For the caregiver the needs often go unidentified and unaddressed. Caregivers remain quiet about their own needs, focusing on their loved one, giving all they have to keep promises and bring their loved ones peace. Caregiving is the journey of a million losses, and there is no team member assigned to focus on the caregiver. Dr. Parker Oliver advocates that the caregivers need a care team and a care plan as well, and the journey continues beyond the death of their loved one.
Registration Information
Registration Fee:
(Includes Lunch and Refreshment Breaks)
Regular Rate: $150.00
Reduced Rate: $75.00
Seniors, Full-Time Students, CHAO Conference Registrants, & CCE Affiliates
(Centre for Clinical Ethics Affiliates include: Providence Healthcare, St. Joseph’s Health Centre, St. Michael’s Hospital, Pembroke Regional Hospital, Rouge Valley Health System, Runnymede Healthcare Centre, St. Joseph’s Health System Hamilton, Toronto Grace Health Centre, Waypoint Centre for Mental Health Care and West Park Healthcare Centre)
Payment:
Please make cheque(s) payable to:
Centre for Clinical Ethics
For more information please contact:
Lynda Sullivan, Centre for Clinical Ethics
Telephone: (416) 530-6750
Fax: (416) 530-6621
E-mail: lsullivan@stjoestoronto.ca
For hotel reservations please call:
Toronto Marriott Bloor Yorkville
90 Bloor Street East (at Yonge)
(416) 961-8000